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Resources

Transtions in Care for Patients
Orientation to Caregiving PDF

There are downloadable PDFs and links to several entities that we have compiled.  We want to provide as much information as we can to those who are fighting this beast. 

Use any or all of these search options to narrow down results.

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Please allow a few moments for your new list to populate.

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On Belay

Categories:

Pediatric, Outdoor Activities

Age(s):

State(s):

On Belay utilizes adventure based activities like ropes courses, rock climbing, and backpacking to create a fun, supportive, and learning/growth filled experience. Youth ages 8-18 who have a family member that has been diagnosed with cancer can attend the program. The family member can be on any stage of the process with cancer (In treatment, have passed, or in remission).

One Summit

Categories:

Pediatric, Trips, Outdoor Activities

Age(s):

State(s):

New York, California, Massachusetts

Our Climb for Courage and Climb Higher programs in San Diego (Spring), Boston (Summer) and New York City (Fall) encompass One Summit’s experiential learning approach to building resilience in pediatric cancer patients and their siblings.

National Hospice and Palliative Care Organization

Categories:

Caregivers, Bereavement, Information & Support Groups

Age(s):

State(s):

Free resources to help people make decisions about end-of-life care and services before a crisis.

Harmony Hill Retreat

Categories:

Adult, AYA

Age(s):

State(s):

Set on seventy acres in beautiful Delaware County, the retreat has 4 private yurts and a chalet cabin available year-round.

Stowe Hope

Categories:

Adult, Trips

Age(s):

State(s):

The goal of the Stowe Weekend of Hope is to provide a low- or no-cost opportunity for cancer survivors, their families, and caregivers, with access to education, healing, and support throughout a weekend-long retreat in Stowe, Vermont.

Reel Recovery

Categories:

Adult, Trips

Age(s):

State(s):

They help men in the cancer recovery process by introducing them to the healing powers of the sport of fly-fishing, while providing a safe, supportive environment to explore their personal experiences of cancer with others who share their stories.

Mary's Place By The Sea

Categories:

Adult, Trips

Age(s):

State(s):

Mary’s Place by the Sea is a respite home for women who are receiving treatment for cancer. We provide services that complement their medical treatment, including oncology massage, nutrition education, individual counseling, Reiki, guided meditation, expressive writing, and yoga.

Pro Bono Counseling

Categories:

Counseling

Age(s):

State(s):

Maryland

The Pro Bono Counseling Project’s mission is to ensure that Marylanders with limited resources requesting mental health care are provided access to volunteer licensed mental health professionals and other necessary supportive services.

Hosts for Humanity

Categories:

Housing Assistance, Caregivers

Age(s):

State(s):

Maryland

Hosts for Humanity connects family and friends of patients with volunteer hosts, allowing them to stay in a low-fare and supportive environment.

Zaching Against Cancer

Categories:

Age(s):

State(s):

Zaching Against Cancer Foundation (ZACF) is a 501(c)(3) non-profit foundation established to provide support to cancer patients and their support networks through scholarships, research and direct patient outreach.

Life with Cancer

Categories:

Information & Support Groups, Adult, AYA

Age(s):

State(s):

Life with Cancer’s purpose is to enhance the quality of life of those affected by cancer by providing evidence-based education, support, wellness programs and integrative therapies.

Send It Foundation

Categories:

aya, Adult, Outdoor Activities

Age(s):

37, 34, 32, 31, 30, 28, 27, 22, 26, 36, 39, 40, 24, 33, 35, 29, 21, 25, 38, 23

State(s):

Send It provides outdoor adventures for young adult (ages 21-40) cancer fighters and survivors, removing them from their cancer experience and creating the space to play, connect, and have fun outdoors. Send It programs are multi-day adventures in Lake Tahoe and the San Francisco Bay Area, designed around activities such as biking, skiing, and surfing; creating a vital community through shared experience. Send It is a unique and intimate experience, weaving together adrenaline-filled adventure, family-style meals, yoga, fireside storytelling, belly laughs, and meaningful connection. All food, lodging, gear and activities are included, and free of charge for participants.

Project Koru

Categories:

AYA, Camp, Outdoor Activities

Age(s):

State(s):

We use adventure-based experiences such as surfing, outrigger canoeing, standup paddling, skiing, and snowboarding, as channels of healing and renewal to treat the mind, body, and soul. Project Koru's programs aim to help young survivors not just survive, but thrive in all aspects of life with and after cancer.

Dear Jack Foundation

Categories:

AYA, Wishes

Age(s):

State(s):

LifeList is a wish-granting program that offers hope and guidance to adolescent and young adult patients who are currently receiving treatment for life-threatening cancer diagnoses.

True North Treks

Categories:

Adult, Camp, Trips, Caregivers

Age(s):

State(s):

They take groups of young adult cancer survivors and caregivers on free backpacking and canoeing treks in beautiful wilderness destinations where you can connect with nature (after going through something as unnatural as cancer treatment), connect with peers who have been through something similar, and connect with yourself through training and practice in mindfulness meditation and yoga. Their programming includes immersive excursions in wilderness settings, residential retreat experiences, training in mindfulness meditation, yoga and other contemplative and reflective practices, and the provision of resources, training, outreach, advocacy, and support in both outdoor and indoor settings. ​

Still Waters Cancer Retreat

Categories:

Adult, Camp

Age(s):

State(s):

Still Waters is for anyone touched by young adult cancer: current patients, survivors of young adult cancer, survivors who had childhood cancer and are now young adults, caregivers, friends, and family members. Over the course of a weekend, they have main sessions with worship music and speakers who encourage you in your faith as you worship together. They will also have breakout sessions on various cancer-specific topics.

Live By Living

Categories:

Adult, Camp

Age(s):

State(s):

Live By Living hosts 2-night retreats that include hiking or snowshoeing to cozy log cabins high in the Rockies, a couple days relaxing, making new friends, and enjoying the beauty of nature. They lead the way and have a sag wagon (or sag snowmobile) to carry your gear and the food. If you don't think you're up for the hike in to the cabin, they can give you a ride. Once you're at the cabin, you can relax, get to know your new friends, and let yourself be pampered by our crew of caring volunteers.

Nueva Vida

Categories:

Adult, Information & Support Groups

Age(s):

State(s):

District of Columbia, Virginia, Maryland

Free, comprehensive, and culturally competent services, including patient navigation, in Spanish to Latinos with or at high-risk for developing cancer in the Washington DC Metropolitan Area.

Lisa's Army

Categories:

Pediatric, Gifts, Adult

Age(s):

State(s):

Pennsylvania

Kelly's Dream

Categories:

Financial

Age(s):

State(s):

Maryland

Offer assistance up to $300 per year for non-medical expenses such as the cost of transportation to and from treatment, food, child care, utilities and other daily living expenses. Must have an immediate financial need that is interfering with treatment planMust be on active treatment. Primarily for melanoma, but other cancer types considered.

SuperSibs!

Categories:

Pediatric, Information & Support Groups

Age(s):

State(s):

Provide support, coping tools, and small gifts to siblings of young cancer patients.

Sy’s Fund

Categories:

Adult, Financial

Age(s):

State(s):

Help young adults aged 18-39 who are facing the challenges of cancer by funding their creative passions, pursuits, and hobbies as well as integrative therapies such as acupuncture, reflexology, and therapeutic massage.

Szott Foundation

Categories:

Financial, Pediatric

Age(s):

State(s):

Minnesota

Provides financial support that replaces lost income when a parent stays home from work to care for a child with cancer. Applications must be made through hematology/oncology social worker at the clinic or hospital.

T.H.E. BRAIN TRUST

Categories:

Information & Support Groups, Adult

Age(s):

State(s):

Provide online support groups to people affected by brain tumors and related conditions.

The Beez Foundation

Categories:

Pediatric

Age(s):

State(s):

New Jersey

The Beez Foundation was created to raise money to support pediatric brain cancer research projects, related support activities for pediatric patients in cancer hospitals and education regarding the prevalence of pediatric brain cancer.

The Blanket Fairy

Categories:

Gifts, Pediatric

Age(s):

State(s):

They send care packages for parents of children who are undergoing long-term stays at the hospital and blankets for the children. The also have a sibling pen pal program.

The C.H.A.I.N. Fund, Inc.

Categories:

Information & Support Groups, Housing Assistance, Financial

Age(s):

State(s):

Connecticut, North Carolina

Financially Assist Cancer Patients that are undergoing strenuous cancer treatments, which temporarily prevents them from working.The Chain fund assist Cancer Patients in areas such as mortgage, rent, utilities, prescriptions co-pays, insurance co-pays, & special food needs. We also make available, support services such as financial counseling, nutritional, emotional and wellness workshops and support groups.

The Cullather Brain Tumor Center

Categories:

Information & Support Groups

Age(s):

State(s):

Virginia

Free-of-charge resource center with an emphasis on quality of life. Our nurse-run facility provides practical help for coping with this life-altering condition, filling in where traditional services lack.

The Cure Our Children Foundation

Categories:

Pediatric

Age(s):

State(s):

Information on how to get drugs that have not yet received FDA approval.
*Please note that Dragon Master Foundation is not encouraging or endorsing the use of non-FDA approved drugs, but we know that some families are seeking this information.

The Giving Garden Foundation

Categories:

Information & Support Groups, Adult, Financial

Age(s):

State(s):

Virginia

Provides financial assistance to cancer patients in Gloucester or Mathews County, Virginia who need help with rent, mortgage, fuel, utilities, groceries, treatments, prescriptions and any other necessary expenses you may be having trouble paying for. This link also has a link to area food banks & support groups.

The Hawthorne Cancer Foundation

Categories:

Adult, Financial

Age(s):

State(s):

Virginia

Provide grant funds for a wide range of needs including food, shelter, transportation, and other living expenses. The only restriction is that the funds not be used for medical bills. This assist is provided for patients currently undergoing or recently undergoing cancer treatment throughout the Richmond Metropolitan area.

The Littlest Heroes

Categories:

Financial, Pediatric

Age(s):

State(s):

Ohio

The Littlest Heroes exists to positively impact the lives of children with cancer and their families through social, emotional and financial services. Heroes Family Fund assists families struggling with fuel, groceries and other financial hardship. Adopt-A-Family Program helps families enjoy the holiday season through gifts, meals and other essential items.

The Lydia Project

Categories:

Information & Support Groups, Financial, Housing Assistance

Age(s):

State(s):

Georgia, South Carolina

The Lydia Project provides free services to women anywhere facing any type of cancer. This support includes ongoing correspondence and encouragement every month for at least twelve months.

The Purple Society

Categories:

Clinical Trial, Pediatric

Age(s):

State(s):

List of all, WORLDWIDE clinical trials associated with that type of pediatric cancer.

The Seany Foundation

Categories:

Camp, Pediatric

Age(s):

State(s):

California

Supports the long-term emotional health of kids with cancer and their families. Their largest, most popular program is the summer camp, Camp Reach for The Sky.

The Tom Coughlin Jay Fund

Categories:

Financial, Pediatric

Age(s):

State(s):

Florida, Georgia, New Jersey, New York

Provide financial assistance for household expenses on a temporary basis for families who find themselves in financial difficulty as a result of their child’s cancer. All financial assistance is determined on a case-by-case basis based on the needs of the child and family.The child must be a permanent resident of one of the following: North Florida – Alachua, Baker, Bradford, Clay, Columbia, Duval, Flagler, Nassau, Putnam St. Johns, or Union County. South Georgia – Camden, Charlton, Clinch, Glynn or Ware County. Northern NJ – Bergen, Essex, Hudson, Middlesex, Passaic or Union County. New York City – Manhattan, the Bronx, Staten Island, Brooklyn or Queens

The Ulman Fund for Young Adults

Categories:

Scholarship, Pediatric, Information & Support Groups, Adult

Age(s):

State(s):

The Ulman Cancer Fund offers remote and on-site Navigation services for young adult cancer patients (15 to 39 years old) and survivors. All services are free of charge and available to family members and loved ones.
They also have a scholarship program for young adults to continue their education after being affected by cancer through their own diagnosis or the diagnosis of a loved one.

Thea’s Star of Hope

Categories:

Age(s):

State(s):

Pennsylvania

Provide resources for families undergoing treatment or dealing with the long-term effects resulting from treatments.

This Star Won't Go Out

Categories:

Travel & Parking, Pediatric, Housing Assistance, Financial

Age(s):

State(s):

Provide funds to families with children diagnosed with life-threatening cancer to help pay for travel, a mortgage or rent check, and other cost of living expenses.

Together Rx Access

Categories:

Financial

Age(s):

State(s):

Individuals and families without prescription drug coverage can gain access to immediate savings on hundreds of brand-name and generic prescription products at their neighborhood pharmacies. Through this website, we also connect you with resources about the Health Insurance Marketplace, the Affordable Care Act, individual pharmaceutical company patient assistance programs, and other patient assistance resources.

Tori Joy's Smiles

Categories:

Pediatric, Information & Support Groups

Age(s):

State(s):

Send mail to children living with difficult circumstances.

Tug McGraw Foundation

Categories:

Information & Support Groups

Age(s):

State(s):

The mission of the Tug McGraw Foundation is to provide resources and hands-on support, foster understanding, promote awareness, and stimulate research and scientific collaboration to improve quality of life for people with brain-related trauma and tumors.

TumorHater

Categories:

Pediatric, Information & Support Groups, Financial

Age(s):

State(s):

Provide emotional support, understanding and financial assistance to those battling tumors of any kind.

UCB Patient Assistance Program

Categories:

Financial

Age(s):

State(s):

UCB will give prescription assistance for Keppra, Keppra XR, Neupro, Vimpat, Briviact, & Cimzia to patients who meet medical and financial criteria.

UnitedHealthcare Children’s Foundation

Categories:

Financial, Pediatric

Age(s):

State(s):

Provide financial help/assistance for families with children that have medical needs not covered or not fully covered by their commercial health insurance plan. Patient must be 16 or younger. Grant funds are not paid to the family or the child outright. Grant families must work with the Foundation on submitting invoices/bills for approved medical services/items after their commercial health insurance plan submits initial payment (if any) to the health care provider.

University of California, San Francisco (UCSF)

Categories:

Information & Support Groups

Age(s):

State(s):

Brain Cancer Caregiver Handbook PDF that you can read online or download.

Victory in the Valley

Categories:

Information & Support Groups

Age(s):

State(s):

Kansas

Encourage cancer patients & families on their journey by offering HOPE through emotional and spiritual support, while providing practical services to improve the quality of their lives.

Victory Junction

Categories:

Camp, Pediatric

Age(s):

State(s):

North Carolina

Free, exciting camp experience for children with chronic and serious illnesses in a medically safe environment.

Voices of Survivors

Categories:

Information & Support Groups, Adult, Grief

Age(s):

State(s):

Film documentaries of cancer survivors and post them online as a source of support for patients, their friends & family.

Wellist

Categories:

Pediatric, Gifts, Financial, Camp

Age(s):

State(s):

Massachusetts

From meal delivery to pet care, Wellist connects patients to local services that help make their life easier. you can build and publish a registry of needed services to share with loved ones. You have complete control over who can see your Wellistry, what items they see and their value. The Wellistry allows you to track activity from loved ones and thank them for their support. Think of it as a gift registry. Currently in Boston and expanding to Philadelphia soon.